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As part of the Department of Neuroscience at the National Tumor Institute “Regina Elena”, the Center for Brain Tumor Related Epilepsy was conceived of as a unique institution which could focus on the particular needs of individuals with brain-tumor related epilepsy.
These “particular needs” include not only the correct management of medical therapies (pharmacological, surgical, radiological, etc.) but also the providing of emotional and psychological support for the patient and his or her family throughout all stages of the illness.
Patients with secondary epilepsy due to brain tumor require a special approach from the perspective of medical assistance. As with all cancer patients, these individuals are faced with the innumerable daily challenges that any grave illness presents. But, in addition, there are the emotional hurdles to overcome as well.
The sudden onset of epileptic seizures is disruptive and frightening and the unpredictability of these episodes makes the individual feel even more vulnerable. Having to put up with yet another physical situation beyond his or her control brings on an added sense of fear and frustration.. Epilepsy in and of itself is an illness which brings with it host of intrinsic psychological problems related to social stigma, shame, and an overwhelming sense of vulnerability.
For this reason, our center is structured in such a manner as to provide not only diagnostic-therapeutic assistance to our patients, but also an important support for their reintegration into social, family and work life.
Our patients and their families are guaranteed the support they need for the entire duration of their illness. Our Center becomes an important reference point and provides an on-going support network; the National Tumor Institute’s Neuro-Oncological Home Care program coordinates regional and local resources along with the patient’s primary care physician.
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